Multiple
Sclerosis
Well, if you read my
Blymey! page then you already
know
the beginning of my
tale. If you didn't read it, then do.
Do you even know
what MS is? Check out this handy little
fact sheet to get the low-down on it.
So, after a very
long and tiring bout with Lyme disease, I find that none of the
symptoms I was complaining of were going away. In fact, most were
getting worse. The optic neuritis that was causing the
original cloudy vision was just part of the day to day routine.
I went to my
neurologist alot during the first few months of 1996. I was
subjected to insane sick perverse electrode testing to check my
nervous systems response time. He stuck these metal
nastiness to my lower legs and sent some low voltage through
me. At one point he says to me "I'm going to turn it
up a little, now." So I'm like "Okay, no
problem." The ZAP the bugger musta sent a gigawatt
through me cause man did it hurt as well as made me jump.
And he did it like 3 or 4 times. This was very unpleasant
and I discourage casual use of such methods on live subjects.
April of 1996 I
received the "definite" diagnosis of MS. Oh,
Lucky Man.
By June of 1996 I
could no longer walk without using a cane. I got a very
nice cane from the House of Canes and Walking
Sticks.
A very nice lady named Kay helped me with my selection, and the
cane I got was a beautiful ebony cane with a water buffalo horn
handle.
June was also the
month I began taking the new FDA approved drug Avonex. This drug is fun to
use, it comes in a little package with an Intramuscular syringe
and a couple of little vials with all the goodies to fill the
syringe and inject yourself. This isn't like your typical
diabetic injection, oh no. An IM injection means it's
gotta be deeeeeep in your muscle, so the needle is like an inch
long. Since it's only done once a week it's not so bad -
the injection that is. The side effects of Avonex vary week
to week, but I can usually count on a nasty headache, muscle
fatigue and exacerbation's of all of the MS symptoms (i.e.
numbness, optic neuritis, etc.). It's not much fun, but
they tell me the long term benefits will make it worth while.
Late August I had
what they call an "episode". Treatment during
"episodes" consisted of a steady diet of intravenous
methyl prednisone, 1 gram a day for a week. Now, if
you read the Blymey! page you know I already
had the pin-cushion treatment with anti-biotics. This was
similar wherein I had a shunt put in my arm, but the drug was
administered via the normal hanging drip method. Now, this
stuff, commonly know as steroids, has a strange effect in such
huge doses. The first effect I noticed was that I was
famished all the time. I could eat like crazy. For
about three weeks I was eating three meals a day, with
desert. I was eating constantly. Hunger was what I
was and food feared me. I gained about 10 pounds during the
weeks of constant eating. The other effect it had on me was
I was awake 22 hours a day, and the 2 hours of sleep I got always
happened without warning. I'd be working late, then I'd
find myself waking up, fully refreshed, and I'd get right into
working as if nothing had happened. Very unusual, but it
allowed me to be VERY productive at work. The down
side of steroid treatment is mood swings and possible bone
collapse. I got no idea what bone collapse means, but it
sounds horrible. Mood swings I can deal with as long as the
people around me can deal with them.
Well, since that
episode I've been pretty stable. Good days and bad days,
sometimes good half days and bad half days. It's a weird
thing, but it's amazing what you can get used to.